What patients suffering from mesh pain have to say

The medical literature unequivocally says that 20% of patients who have mesh implanted for hernia repair develop chronic pain. 5% develop pain so severe that ir ruins their life. But that is just a statistic. We have compiled some comments made by patients suffering from mesh pain to put it in human terms. We have only redacted private information.

I have a Spiglian hernia. Surgery on a Friday, prior to a 3 day holiday weekend. After anesthetic wore off, I had nonstop excruciating pain. I phoned, emailed, and texted Dr's office, pleading for help. No return calls until I had made many, many calls. Only an offer to send a prescription for additional pain meds.I needed to be seen to find out what had happened. NO ONE would see me. After the 3 day holiday weekend I called and emailed again. No response. I went to the Dr's office and they told me I could not be seen. I sat in the waiting room for an hour until a Dr finally saw me. She told a colleague I needed something removed. She said nothing to me and wanted to inject lidocaine into the pain area. I decided no, I would be in the same situation. I had a second surgery right away. Afterwards I was hit with full blown Fibromyalgia. Never had it before. Now I'm in abdomen pain daily at a 5 - 8 level.

Although I'm anxious about another surgery, I've pretty much given up all activity in my life in an effort to keep my level of pain to a minimum. Prior to surgery, I was a world class ultra distance swimmer. I have only attempted a pool swim twice in two years since surgery, and both times led to extreme pain for weeks afterward. I am unable to run or ride a bike. I also experience bad pain after ejaculation, so my sex life is greatly diminished too. I've seen multiple doctors, all of which offered very little in terms of a solution or even a cause of the problem. I'm just looking for a doctor who is willing to help.

I don't know what to do anymore.the doctors have shuffled me around and made me feel crazy. I used to be active and happy. Now this has ruined my life. I have a high tolerance for pain but it's now out of control. I am constantly focused on how not to hurt by movements or activity that I can't consentrate on normal things. My life sucks now,I am always sad ,crying,angry and frustrated. This is so not me. If I thought I'd have to live the rest of my life like this, I'd be ready to quit .

I had bi-lateral inguinal hernia surgery in August of 2010. I still suffer from constant pain and discomfort which limits my ability to work full time and participate in my life as I once did. I am looking for any information that could help me regain some control of the chronic pain I am in without haveing to rely on pain medication or other temporary fixes. Thanks for your time.

hernia surgery 13 mo ago still have pain and swelling

After a long walk on the beach, and a bike ride it gets inteince, sharp pulling burning pain, with some swelling. Lower abdomanl pain and blouting, sex and social life shot down. had a Inguinal Hernia repaird sept.2009, had my ups and downs with it but was able to work and exercis, i had reinjurd August 2010 was told i had a ingunal sprain or tear. and had nothing but pain since. Had three CT scans done and nothing shows. have seen many doctors and many pain pills, 1 scrip Tramadol 50mg, 1 scrip Naproxen 375mg, 2 scrip Naproxen 550mg, 1 scrip of Dycyclomine 20mg,1 scrip Tramadol/apap 37.5/325mg, Cirofloxacin 500mg. only one Doctor has said i need collanoscopy to see what is going on, trying to follow up with that. The mesh was a light waght mesh. Both incadeince were work related. Long storie, now its all on me. can you help?

constant pain in my left testicul lower back lumbar back of neas, ansiety and depretion attacks sleeping desorder.

I had a mesh put in 3 to 4 yrs ago but im having alot of pain more and more each day.

ihave constant pain in the groin which radiates to lower back entire left leg. part of mesh was removed in june. rest of mesh is attached to spermatic cord. what can be done to end pain

I have a serious mesh and scar tissue on ligament problem.
Constant pain

Experencing allergic reactions to the mesh: shortness of breath, back pain, rash on chest, pain on both sides of the belly button down to the thigh,heart racing,chest burning, very nervious, pain in stomach when I eat, sinus congestion, some watering eyes, anxiety, testicles hurt occassionally.

I have pain closer to my testicles as well. As well as heavy bulging sensations. I've had a mesh repair for a double inguinal hernia before and it was a nightmare took me almost a month to be able to walk upright. And have had mild pain ever since then, but has recently gotten more severe. The last surgery was in 2008...

Double hernia on right side with mesh and lower hernia on left. Pain is on left side. Operation was done in 1987. Constant pain, Pain aggravated by activity, Daily pain, Pain is unmanageable

Initial surgery was incisional hernia repair. Long term mesh staph infection. Have had 10-12 debridements with some mesh removal. When my infection started in April 2010 my attending surgeon dumped me I guess because I became a complication. MY Primary has done his best to help me but, he has trouble getting a surgeon to operate on me. Could you tell me what I should do? I was just D/C'd from the hospital on 1/19, and I am already re-infected.

Had hernia surgery feburary 2009 with mesh. Has not stopped hurting since then seems to be getting worse everyday. Hard to do anything

I am wondering if you do mesh removal.

I am from Ontario and cannot find a surgeon here that will remove this mesh

history- on march 31st 2011 i underwent inguinal hernia surgery with mesh. Followed recovery procedures and started having SHARP pains in the area of surgical site approximately 1 month after surgery. Pain frequency and intensity grew tramendously. At this point walking became impossible.I haven't been able to walk or sit up since. Pain intensity has decreased somewhat but now pain in both hips and knees. Any movement of the hips increases pain dramatically. Seen many doctors unwilling to look at hernia or mesh as the problem. DESPARATELY looking for help.

I have been told to live with the pain that nothing can be done about it.

Have had inginual surgery two separate times. First on on left side 45 years ago and the second on on the right side using mesh (about 10 years ago). Several years ago I notice that toward the end of the bowling season I starting haveing soreness on the right side the day after bowling. This has happened in the last three or four seasons. I have had it checked by three different physicians who found nothing obviously wrong. As I have mentioned, I have also had a cat scan in that area which didn't show anything. Any suggestions as to what I should do? Is this just something I'll have to live with? Should I give up bowling?

this mesh has made my life a total hell

the mesh was applied for a hernia repair and I have chronic pain since then. CT Scan test shows hernia is gone however, I feel pieces of the mesh when I bend over or try lifting my leg. Also, I feel as if have few needles inside and that is where most of the pain come from.

the pain has progressively got worse in the last few months. it feels like there is something ripping or tearing inside of me. my right side is going numb mostly from buttock down thigh to leg. also at times I get a sharp stabbing pain from area of hernia repair to my buttock. having hard time sleeping can't lay on side as pain gets bad.

I have had this nerve pain at the top of my right leg for 6 months. It started off as a burning sensation and I thought it was my shorts rubbing. However it has progressively worsened. I had a hernia operation several years ago and a mesh was used. A week after the op i was taken back in to hospital with severs pains in both legs and several of the clips that were used to keep the mesh in place were removed. After that op I was fine. This pain is similar but i don't know if it is related to the mesh or not. I have also been told that it is meralgia panesthetica. I would like to know one way or the other what it is. The pain is awful and i really don't want to start taking drugs such as galopentin.
I look forward to hearing from you.
Kind regards

I had a bilateral inguinal hernia mesh repair done some 15 years ago. It was the third one on my right side (first with mesh) and I was told only after the laparoscopic surgery that I also had one on my left side, though I had experienced no symptoms. I believe the surgeon did this to pad his bill. Regardless I had a sheet of mesh inserted across my entire lower abdomen.

While I have had no recurrences, over the years I have had an increasing feeling of tightness in my lower abdomen and front of my hips so that if I try do do anything that arches the back, I have this strong unnatural sensation of pulling. And the whole area becomes increasing tight after any attempt to stretch the area. I used to be very active/athletic and now I can basically do nothing. Even walking causes some minor discomfort and my lumbar flexibility has dramatically diminished, I believe, because of my inab

My inguinal hernia was repaired with mesh back in 1994. I was pain free for about 2 years and have been in this awful pain since then. I have no insurance, am unemployed right now and in school. This pain is so someone is stabbing me in my old hernia site. If I do anything at all like move a chair, I'm in bed with pain such that I can't even walk for days. How can you help me with this?

i had a mesh patch put in in 2004 it never really seemed right but didnt bother me to much till last year or so

please help.I have been to so many doctors and no one will help me, even the doctor that put in the mesh brushed me off. so now I keep my pain to myself,It hurts so bad.I am a strong, hard working single mom but I am losing my battle and getting so tired.

had mesh hernia repair 5 years ago no im in contant pain

been to many, many doctors... i've spent 20k + over the past 2 years. i am a very healthy 43 year-old but my hernia surgery changed (i.e., ruined) my life. i hurt everyday.